Saturday, February 12, 2011

Coming Back Home

After coming home we were almost in a twilight zone. We had finally gotten the answers we were looking for. Now what?

All we can do is give Emmie the best possible care and hope that she continues progressing.

Our problem seems to be that on the BattelleTest that some of these Early Step programs use to gage whether or not a child should get therapy from the State Emmie doesn't score low enough to qualify for services. But at the same time we are being told that she needs the therapy to continue so that she can keep up with the other kids as her brain condition makes it many times harder for her to learn certain things.

This is something we have to pay for? If I do the math at 5 sessions a week covering Physical Therapy, Occupational Therapy and Speech therapy that adds up REALLY fast and although we make an ok living this would really change our financial future.

The Early Steps programs only go until the child turn 3 anyway (most states have them). Once the child turns 3 they might possibly get therapy through the school system? (Once I get more information and figure this all out Ill let you know.)

As Emmie is getting more adventurous wanting to climb the playground equipment and do what the other kids her age are doing I get worried. She is so unstable and could be pushed over by your finger. Other kids don't know to watch....or be careful and Emmie is to shy to stand up for herself. She really has to think about her next step and where it should go and needs to take her time. The other kids just fly right past her.

She is trying so hard and really doing the best she can. She is so determined and will try again and again until she gets it. I hope this doesn't shake her confidence at all as she gets older. It'll be our job to make sure she stays the confident little girl she is today and protect her in anyway we can without being overbearing.

1 comment:

  1. I am typing this through eyes blurred by tears. Tears of sadness that you all have to go through this, and tears of hope and inspiration at Emmie's strength and bravery. My thoughts are with you three. xoxoxox. Erin.

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